Improving health care for people living with serious illness

We envision a transformed health care system that ensures everyone receives care grounded in understanding, empathy, dignity, and respect (because you can’t have quality care without it).

News & Updates

Impairment and Disability Identity and Perceptions of Trust, Respect, and Fairness
Impairment and Disability Identity and Perceptions of Trust, Respect, and Fairness
Impairment and Disability Identity and Perceptions of Trust, Respect, and Fairness

August 5, 2024

Using our 2020-2021 Public Experience Research, Salinger, et al. explored how individuals with disabilities perceived procedural justice in healthcare settings in this article. The survey found that those with impairments or identify as having a disability often report lower levels of trust, communication, respect, and fairness in their interactions with healthcare providers. However, health care perceptions differed between groups defined by impairment status and disability identity. These findings suggest a need for healthcare systems to better capture disability identity in order to improve their healthcare experiences.

IHI's New My Health Checklist
IHI's New My Health Checklist

August 5, 2024

The Institute for Healthcare Improvement (IHI) has released a new, comprehensive guide designed to help older adults assess all aspects of their health: My Health Checklist. The free checklist supports important tasks like tracking medications while also guiding individuals to reflect on what’s going well with their health and well-being, identify areas for improvement, and articulate questions or concerns they can share with their care teams. 

Serious Illness Care Education Forum - Tufts University School of Medicine
Serious Illness Care Education Forum - Tufts University School of Medicine

June 25, 2024

Our June session of the Serious Illness Care Education Forum featured Dr. Tamara Vesel from Tufts University School of Medicine. She led a great discussion about An Innovative Workshop to Teach Primary Palliative Care Communication Skills to Fourth-Year Students at Tufts University School of Medicine. One particularly interesting approach of the workshop was using professionally trained actors as faculty in the course to teach students about non-verbal communication skills. Now required coursework for all fourth-years, the medical students responded very positively to the workshop and reported using many of the skills they had learned in subsequent clinical rotations.