Since many people turn to clergy during times of serious illness, clergy must have the training and insight to be able to both encourage congregants to have these conversations with loved ones and support them when they do.
Updates from the Coalition
Got an idea to support family caregivers?
The Massachusetts eHealth Institute at MassTech is seeking digital health startups with solutions for unpaid family caregivers to compete in the Massachusetts Digital Health COVID-19 Recovery Challenge. The Challenge is focused on finding solutions for unpaid caregivers who provide support to loved ones outside of traditional child rearing. Applications are due July 30, 2021.
Sister to Sister: Empowering Black women as health care consumers
When it comes to getting the care that supports what matters most, there is a lot to talk about. Community Conversations: Sister to Sister in Cambridge, MA provides a forum for Black women to learn from experts -- also Black women -- on everything from allergies to elder care.
Facilities assess visitation policies as COVID-19 restrictions ease
From the Betsy Lehman Center for Patient Safety, a Coalition member: Health care facilities in Massachusetts are beginning to ease a series of unprecedented visitation restrictions in place since early 2020. They are now taking stock of lessons learned over the past 15 months about coronavirus transmission, infection risks and the consequences of sequestering patients and people who live in residential care settings away from family caregivers and friends.
C-TAC Policy Forum
Our Executive Director, Anna Gosline, is participating in the Coalition to Transform Advanced Care (C-TAC) Policy Forum on May 12, 2021. The forum offers changemakers an insider-view of federal serious illness care policies that they can leverage to drive change in their communities.
Massachusetts is building a state POLST registry
We’re excited to announce that Massachusetts is building a state electronic registry to allow clinicians timely and trusted access to the medical forms that document patients' preferences for care near the end of life. The registry will include forms called physician orders for life-sustaining treatment, or POLST.
Nursing Schools Endorse CARES Competencies
The Coalition is proud to be partnering with the Massachusetts Association of Colleges of Nursing (MACN) to help ensure nursing students receive the necessary educational foundation to provide compassionate, evidence-based palliative care over the course of serious illness and through the end-of-life. Through this unique partnership, MACN has endorsed the CARES and G-CARES competencies.
Black Women in Leadership from Diva Docs
Join Coalition working group member Rev. Gloria E. White-Hammond, MD, MDiv for what's sure to be an extraordinary conversation hosted by Diva Docs Boston, a professional organization of Black Women Physicians in Massachusetts led by Philomena Asante MD, MPH. It's on Wednesday, March 31st at 7pm Eastern.
NASEM's Webinar on Serious Illness Care, Structural Racism, & Health Disparities
The National Academies of Science, Engineering, Medicine (NASEM)'s Roundtable on Quality Care for People with Serious Illness hosted a webinar in late January on “Serious Illness Care, Structural Racism, and Health Disparities in the Era of COVID-19”.
Talking on the phone really does help...
Just published in JAMA Psychiatry, Maninder K. Kahlon and colleagues conducted a randomized clinical trial to see if empathetic conversations by telephone could reduce loneliness, depression, and anxiety in at-risk older adults. The answer? A resounding yes.
Start with the Community: Phase 1 research is complete!
The Coalition has embarked on an ambitious four-phase consumer research project that centers on equity using participatory design methods. The goal is to identify new messaging, communications, as well as meaningful community and/or clinical strategies to improve serious illness care experiences of at-risk populations. Read more about each phase, and our findings from starting with the community.
In the News
Medical Students learning how to have difficult conversations with seriously ill patients and their families.
Medical Schools are teaching students to care for seriously ill patients, especially near the end of life.
Coalition co-chair Maureen Bisognano discusses her career and experience working to improve health care quality and encourage patients to engage in advance care planning.
An update on the progress of the Coalition’s work with the four Massachusetts medical schools on revamping undergraduate curriculum to focus on serious illness communication skills.
The Coalition convenes the four Massachusetts medical schools to strengthen curriculum around advance care planning conversations. Also discussed is the Coalition’s research and comments from patients and families.
This piece includes information on the Coalition’s most recent research and describes an innovative training program at UMass Memorial to prepare nurses for hospice and palliative care.
Beth Israel Deaconess Medical Center (BIDMC), the Official Hospital of the Boston Red Sox and member of the Coalition, promoted Healthcare Decisions Month at Red Sox home games during April. Sox manager Alex Cora is featured in the engaging video.
Cape Cod’s Quality of Life Initiative is an innovative, community-based program focused on getting people in the region to name and talk to a proxy.